Good day sirs and madams, and welcome to part 2 of Curing Tourette’s. Today we’re going to be starting a list of Tourette’s Syndrome facts. I’ve been thinking a lot about how I want to approach this series. There is an incredible amount of variables I’m testing, and a whole mess of data I am tracking. Frankly, the project of figuring out exactly what I have to say and what order I want to say it in has been a little daunting, but I think I know how I want to do it.
But I will need your help. Now, it will probably be most helpful to hear from the readers who actually have Tourette’s Syndrome, or from parents of children who have TS, but I do not want to exclude anyone. If you know someone with TS, or you think you might, or you overheard something in a movie, on TV, or anywhere else about any sort of tic disorder that might be Tourettes, please let me know. Speak up.
This page will be the Tourette’s facts headquarters. In the comments section, please tell me anything that you consider a fact about this movement disorder, or anything you know of that anyone else considers a fact. As the list grows, I will add to the article, up here in the body of the post. I will discuss every point as my own experiences and hypotheses will allow, and whenever possible I will provide suggestions that I believe are worth testing.
Read: not providing medical advice, but trying to help us all ask better questions and know what data to focus on and what we can discard.
So I’ll start for now with something I know to be a fact about Tourette’s. It was named after this guy, Gilles de la Tourette. That link will take you to a brief bio I wrote of the man that I buried in the background of the blog so I could link to it in this series.
So, please help if you can. This post will probably eventually span a few thousand words, but it is going to be a helpful discussion, I promise.
Tourette’s questions and associations
Okay, I am back. I’m going to start listing some of the questions and associations that I’m going to be exploring on this page and in this series. I’ll refine them with your input, observations, and update them as my own experiments and perceptions shift.
- Why is Tourette’s more prevalent in males?
- Why can’t neurologists agree on when normal fidgeting stops and TS starts?
- How many people actually have TS? This gets a lot tougher to answer when you consider the second point.
- Why do the ages of Tourettics vary so wildly with respect to the onset of the symptoms?
- What role does breathing play?
- What environmental factors are associated with increases and decreases in tics?
- I associate movement from one room to another with an increase or decrease in tics
- What role does nutrition play? I’m particularly interested in the effects of stimulants on Tourette’s
- I associate the time of day, or the amount of hours spent conscious as a gauge of how strong my urges to have tics are
- It seems consistent that when two people with TS are in the same area where they can hear or see each other, they will both experience a worsening of tics. I am very interested in seeing whether a person who can control their tics, or banish the urges altogether like I have, can have the same effect on someone else with tics. In other words, can two people make each other better in the same way they can make each other words, symptom-wise? I suspect this is something along the lines of entrainment on the biological level
- Simultaneous tics versus sequential tics – can one be changed to the other?
- I believe that tics can be altered to the point where they will do the least possible damage to any tissue involved in the movement or vocalization – I also believe that it is this process that eventually led to the ability to eradicate my own tics
That’s it for now. I’ll be back later to expand on these.
And…back to the post
Then, early next year, I am going to release a DVD that will outline, step-by-step, what has happened to me. Some things must be shown to you in a different format in order to make sense.
PS: for anyone who might have wondered if I declared myself cured prematurely, I didn’t. Better than ever!
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