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Tourette’s Syndrome Q & A – Ask Questions if you’ve got em

For those of you who have followed this blog based on the Tourette’s Syndrome stories, you know that there have been some extreme ups and downs. I’m currently not in the down phase, but have been inching back towards it, to my extreme annoyance.

When I was speaking in Kansas last weekend I got a lot of questions about TS. Some I could answer. Some I just had to shrug at and say “I have no idea.”

But as I talked with people I realized some of my ideas have changed, again. This has happened both because of setbacks and successes. The process evolves as experiments either prove or trash my various hypotheses.

Today, if you have Tourette’s, you have a child with it, or you’re just curious to know more, please ask questions in the comments section.

If I can answer your question, I will. If I am speculating, I’ll say so. If I have no idea, I’ll hope that someone more knowledgeable or someone with an anecdotal or empirical piece of evidence will step in and take a stab at it.

I’ll leave this post up top for a couple of days if we get a good discussion going.

Have at it!

Josh

Comments on this entry are closed.

  • Monica Haney February 29, 2012, 10:45 am

    I found out last yr. that my 6. yr. old son has TS. & since we Home School I’m not only his mother I am also his teacher. He does really well academically and is a head in most subjects. But I’m wondering what challenges my son may have when it comes to school. I’m trying to figure out where tolerance meets discipline in this area and trying to separate the TS from the 6yr. old boy.

    • Josh Hanagarne February 29, 2012, 5:27 pm

      I think it’s probably different in every case. One thing my parents did very well was not to make an issue of it until I brought it to them. As long as I was happy, doing well in school, and making friends, they let me be.

      When I asked them, in 9th grade, if we could try and figure out what was happening to me, that’s when we went to the neurologist.

      As far as pressures it can cause in school or other social situations, it’s not that different than all the usual problems any anxious child would have: it all just gets amplified because it makes it much harder to blend in and be ignored.

  • Monica Haney March 1, 2012, 3:51 pm

    Thank you Josh. :o)

    • Stuart Atkins March 4, 2012, 1:53 pm

      Hi Monica. My growing up story is almost identical to Josh, except his symptoms are more severe than mine. Family support is critical. I have Tourettes but it does not have me. Tourettes did not slow me down even though it was hard at times. I was an exceptional athlete, student, and am now a successful business owner, professor, author, and dad. Your son will do well, just give him the support and understanding he will need.

      • Monica Haney March 5, 2012, 11:09 pm

        Thank you Stuart. Luckily at age 6 Logan want’s anything but to be ignored 🙂 He’s a very happy enrgetic little boy, both my boys make me one proud Mama.

  • Pauline March 1, 2012, 7:07 pm

    Josh, from following your writing for a while, it appears that TS is somewhat like other medical conditions which must be managed more than cured. They wax and wane, may or may not be helped by medication, and produce symptoms which one must get through in daily life. I’m thinking of fibromyalgia, chronic fatigue syndrome, irritable bowel syndrome, Crohn’s disease, and others that won’t go away, so we end up finding out (often on our own) what we can do to manage the problem and live our lives as well as possible.
    Is it something like this?

  • pat miller September 18, 2012, 7:39 pm

    I have turrets but unlike everything I have read or heard about the condition my tics did not become obvious until I was in my 50’s. The neurologist I saw thinks I just did not recognise them, but I can’t understand why. It started with a verbal tic – usually either “time” or “to” or random numbers, but the physical tic’s didn’t become apparent for another ten years. Has anyone else had a similar experience?